Quick guides - Pacing V Overdoing and Doing V Being

Hi!

I have recently made these two little quick guides...check them out!

This one is comparing Pacing v Overdoing. I often used to live by Good Days and Bad Days (sound familiar?) until I learned about pacing model or graduated exposure and it is now something I incorporate into my every day life!



Also, I have read recently widely about the different mind states we can be in and have made a quick comparison of the Doing v Being states. 

Here are some quick hacks to help you move towards the green zone:

  • Pause. Take 3 deep intentional breaths - with a long exhale through your mouth, sighing ....aaaahhhhhh.
  • Connect to your senses. What can you see? What can you hear? What can you smell? What can you taste? What can you feel?
  • Take a #3MinuteBreathingSpace. There are many available to download online, keep it on your phone for when you need some #EmergencyCalm


(and, quick credit to my awesome, techno savvy 13 year old son who help with the graphics ! xx)

Default thoughts – Is this the final puzzle piece?


You know that feeling you get when you are doing a jigsaw puzzle? At the start, it’s overwhelming. You look from the complete picture on the box’s cover to the 100s, 1000s of jumbled pieces and it looks impossible. But then you follow the process. Find the edges and corners, some distinctive pieces and slowly it comes together. Then more pieces are in place, suddenly you think “hang on, this is starting to look like something.” You see some fully formed parts. The number of unmatched pieces is decreasing. Then you get the smug realisation and joyful feeling - “Hey, I’m getting it, I’m so close!” Often, there is just a single piece that, once found, makes everything else just fall into place. Complete, whole, a masterpiece.

 

The first corner I found in my jigsaw was when I attended the pain management course in 2009. I learnt there are common reactions and thoughts around pain. I became aware of my thoughts. I was not yet able to change them, but I took notice. My thoughts were pretty similar to everyone else’s. They were thoughts like this:

·      I can’t handle this anymore

·      Why me?

·      I am letting everyone down

They might have started small, innocuous, but they could quickly snowball. Not nice, not helpful and most importantly, these thoughts contributed to and exacerbated my pain. 

 

More edge pieces have since clicked into place:

 

-       We are hard-wired to the negative and we have many of the same negative thoughts on repeat. This came through on my two Breathworks retreats and through attending a Mindfulness Based Stress Reduction (MBSR) course. I do wonder if knowing about negativity bias has, in some respects, given me permission to have these thoughts and kept me in the caustic hold of their repetitive loop. 

-       Being mindful works! Gaining knowledge is one thing; doing something about it is different. Any time I put effort into regular mindfulness practice, I would see the benefits in my daily life – reduction in stress, more present moment joyful experiences and better management of my pain. 

 

Then, in the past few days I have been on the edge of that exhilarating feeling - finding the crucial last pieces. 

 

These big ah-ha moments have come in two parts:

 

PUNISH, REPEAT

This week, I was listening to a podcast by Mike Robbins where he explains a process for dealing with emotions… 1. Recognise, 2. Acknowledge, 3. Forgive, 4. Change. It doesn’t make for an easy to remember acronym, but he went on to explain that he was okay with the first two steps, but then he would 3. Punish and 4. Repeat. Oof. Dagger to the heart. This is what I do. Often. Why? I beat myself up with criticism such as “I should know better”, “why am I here again in this hole?”, “You idiot.” I have some work to do. I must go beyond just recognising this pattern, to not just build up the self love, self compassion and other mindful tools to help with this process because awareness has not yet stopped it from happening. 

 

DUPE THE LOOP

Ruminating on the “4. Repeat” part of this equation, I started listening to another podcast. It could not have come at a more opportune time. It was a quick one, full of nuggets from Joe Dispenza. Listening, I felt a zap of energy – time may have even stood still for a moment. Hang on, did I just hear that missing piece? 

 

I have identified I am in this looping cycle of negativity. Despite knowing about it, the cycle continues preventing me from reaching those final steps 3 and 4 (forgiveness and change). These thoughts are negative, repetitive and – they are a program. A program looping throughout my long history living with pain (and we are talking 30+ years!). It runs automatically. It is the default. In fact, my brain thinks it is being helpful. Let’s run her program, put her auto-pilot. It’s the path of least resistance, so let’s run it again. And again and again.

 

The program has been running successfully. Look, there she is, back in her bed. Ugly-crying and wishing things were different. Again. Back in familiar territory. She’s safe there in her cocoon of shame. That’s cool. The brain celebrates the win. Repeat. 

 

Each time I find more pieces of the puzzle, figure something out or try something new, notice my thoughts, maybe make new choices, my brain thinks “Hang on a minute. This ain’t the program. Abort. Stop her, this isn’t scripted! Danger, abort! So in comes doubt to knock me over. Fear joins in. Then, in comes the kicker – pain, my old friend! Result: It’s all too hard, I give up. Negative thoughts run through the program – I can’t handle this, I am letting everyone down, why me!?… Welcome home. Full circle. Back into the cocoon I go.

 

So, my current conundrum is how to stop the program. Surely it is based in the awareness, mindfulness, compassion – I know these tools. I can use these tools. And now, I have a much clearer understanding of the process. It’s time for me to dupe the loop!

 

I have another tool too, something recently grabbed from ‘Mindfulness on the Run: Quick, effective mindfulness techniques for busy people’ by Chantal Hofstee. When elements of the default program prop up, I plan to notice. I will respectfully acknowledge and say to myself: “Hello fear, Hello doubt. You are here. It makes sense that you are here because I am changing the default program that you have been running my whole life. Don’t worry, I’m running a new program now. That will feel hard for you at first but it’s okay, I can handle this.”

 

Do you know what your default program is? How long has it been running? Can you notice it? Change it? 

Bring in the light - the rollercoaster of "knowing" my pain

I have had some time to reflect on my very long history with my chronic pain. From diagnosis to the present, it is well over 30 years. Of course, there have been many ups and downs along the way. There have been times when I have known something for certain only to later form another viewpoint. Sometimes it comes with education, sometimes via support from my community and sometimes from looking internally. Learning, re-learning and starting over.

Building this knowledge has been a rollercoaster of emotions and lessons.

At the bottom of the rollercoaster (AKA Darkest Days): Pain was like being trapped in a dark tunnel. No light, no fresh air, no happiness, no escape. When I was in pain, I would withdraw to this dark place accompanied only by my disturbed headspace of negative thoughts, blaming myself for past mistakes or worrying about the future. I accepted these thoughts as facts and could see no path towards the light. I was drowning in this depressive blackness. I was so caught up in my own pain, physical and emotional, it was very hard to see anything beyond the darkness. I was blinded to the impact I was having on others, selfish and unaware of anyone but myself. But the problem was, even though I felt isolated and alone, looking back, I had taken my loved ones down into that dark place with me.  

Gaining momentum (AKA Welcome to Pain Science 101): Attending the self pain management course in 2009 was a big turning point for me. I learnt many tools and skills to change my approach to pain. I learnt pacing, was introduced to mindfulness and I became aware of how much my mindset influenced my experience. I put these learnings into action and, for the most part, proceeded to live well with chronic pain. 

Sharp dips (AKA Re-Learning): In early 2019, I completed a half marathon, but a few months later a flare up came and stayed. My ability to manage my pain shifted. I fell into past habits, I became trapped by fear again. Add in a global pandemic and last year felt very hard. I found myself snowballing once again. All that information I thought I "knew", it went out the window - I forgot it all. This was me, a person who had for many years professed live well and #SelfManageChronicPain. Was I though? Really? Managing? So, back to the drawing board I went. 

More realisations (AKA Feel to Heal): I knew I needed some help. A lifestyle based exercise and education program materialised just when I needed it. Through this process, I have recently been examining many parts of my inner world, asking myself questions about my pain, my future, examining my values and purpose.  Much of this work revolves around the question - how will I get through this? What changes do I need to make? I have been pausing, pulling back from distractions to turn inwards...I am getting closer to the answer. And these days, I am saying to myself less of the "I know..." and more of the "I feel...". 

The rush (AKA The Secret? Maybe?): When you are on a rollercoaster and it is grinding, clanking and slowly creeping towards the top, you know what is coming. Your pace quickens, a sharp intake of breath. It is equally scary and thrilling. The anticipation. I feel like I am right there, on the cusp. The exhilaration of the rush downwards is right there in my grasp. I feel like I am so close. 

What has made me feel this way?

  1. Working out what I want. I have always been very focused on pain. Pain as a measurement tool, Pain as a trigger, Pain as a reason. That feeling of being in that dark place - that was definitely to be avoided. So often my goals, my plans, my dreams involved some aspect of avoidance. I even used it as a motivating factor in the early days - my "WHY" was clear - "no more darkest days". No more being at the bottom of the rollercoaster - or falling in that hole in the road (this is a gloriously pertinent poem by Portia Nelson). Recently, my life coach (quick shout out to the amazing Anna Baylis) asked me to flip the wording - focus on what I DO want. And my answer came quickly. A while ago, we went on a family bushwalk to a local (secret!) waterfall. I was very mindful on the walk, stopping to examine with awe the wonders of the natural environment, totally engaged in the company of my husband and kids, revelling and lingering in the joy of the experience. Pain was there too, just a physical feeling in my body. This is it. This is what I want. More waterfall days!
  2. Working out who I am. My twisted, metal-shackled spine is a part of who I am. My challenges, my pain, all a part of what makes me uniquely and imperfectly perfect. While I understood the importance of acceptance, I have only recently come closer to this crucial realisation. To truly accept and love myself, means accepting and loving all parts of me. My pain is not something to be managed, tamed, compartmentalised. I need to finally, really listen to what my body is telling me. What is my pain trying to tell me? I am coming to realise, it is this -  Connection, Compassion - loving all of me, as I am, in this moment. 
  3. Working out what needs to go. A few more blog posts to follow on this topic. Just as a butterfly sheds its cocoon to transform, there are a few parts of the old me that need to go. Break up letters will need to be written. But, as a heads up, "achievement", "doing" and "control", you have been warned - you are in my cross hairs. To truly soar, I need to welcome in kindness, patience, love and awareness. 




So, there you have it, I have summarised my 30+ year history with pain into one rollercoaster of a ride!

And, I am not done yet - #AlwaysLearning